Saturday, October 25, 2014

“Sometimes heroism is nothing more than patience, curiosity, and a refusal to panic.”

Hello friends,

I wanted to give you an update on how Emma is doing.
We went to the neurologist appointment.
She asked a ton of questions.
She did not answer ours.

Filling out forms. Lots of questions.

She thinks Emma will do well on the medicine.

We are glad there is medicine that is effective.
But they don't know why.

ha.

My daughter in law Melinda said, even if Emma did not have
a grand mal seizure and they learned she had the little seizures (absence seizures)  they would have put her on meds for those. ..the little ones....She said, they don't even want you to have those.  Which I didn't really understand because they were so unnoticeable.  But something is going on in her brain that should not be going on.  So they like to calm it down with the drugs.

It made sense to me.  Thank you nursing student Melinda for being able to explain something we asked three different ways to the neurologist.

Anyway.

Emma has been seizure free for eight days!  She is almost to the full dose they want her on and she will be relieved to get there.   The side effects are not terrible.

r.e.l.a.x.   #yogi #healing #aaron

We are hoping and praying that the medicine works as expected.

Thank you all of the love and care and thoughts and prayers.

I am incredibly blessed.


Love you.
Mean it.

Donna

“Sometimes heroism is nothing more than patience, curiosity, and a refusal to panic.” 
~Leif Enger








20 comments:

  1. Anonymous10:47 AM

    I have been praying for you all. Your daughter in law is a very smart young woman. :-D. Love you.....mean it!!!!! :-P. Nana Carol Sue

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  2. I'm pleased to read this, and glad for the meds (with little side effect) and very glad for Melinda and her explanation.

    The photo of you two, bathed in light, seems like a visual of the prayers and encouragements spoken, offered up - and the blessings being poured out. :-)

    Thanks for the update, dear Donna. Youddabest!

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    1. Anonymous2:58 PM

      Oh Susan, I thought the same thing about the picture...God's Love pouring over Donna and Emma just as we prayed it would. Thanks be to God for medicine and answers from Melinda. Sometimes doctors are too wrapped up in thinking about what they are prescribing or diagnosing that they don't answer questions...I have found this to be true, sadly. We will continue to keep Emma in our daily prayers and the rest of you in the family, too. love and prayers and thanksgiving for good medicine and God's blessings,
      jep

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  3. Thankful for medication that helps. Love the photo of you two. Refusal to panic? Yes.
    Praying for the seizures to be no more. Hugs, Renee.

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  4. I didn't know. I will be praying for Emma. Sending so much love.

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  5. Anonymous12:35 PM

    Thank you for the update. I have been praying for you all. Thankful that Emma is on medication to help and the side effects are not terrible. Melinda's answer is comforting. I hope you eventually get some questions answered. Emma, trust your intuition and it never hurts to get a second opinion.
    God bless,
    Sarah P. from Iowa

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  6. Amy J in WI1:53 PM

    Thanks for the update, Donna. I will pray that the medicine will continue to do its job, and for Emma to find a new normal very soon!

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  7. Hooray. Praying for Emma's health and your peace of mind. I could get goofy and tell you my favorite line in Young Frankenstein...It has to do with a brain and ABBY normal! :)

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  8. Our bodies are made in wonderful mysterious ways by the Creator. Yes, we need to put our lives in a physician's hands sometimes, but always trust the Great Physician to take care of the rest of the story (because He knows because He created it!) Continuing to pray.....primarily for peace of mind to move forward!

    Blessings,
    Tammy ~@~

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  9. Whew. Oh whew. And many many years of whew to come. The neurologist may not have had a perfect answer but that '8 free days' sounds dandy. Please God, let it be 8000+
    I want to hug you both.

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  10. Anonymous10:57 PM

    I'm so glad that Emma has been seizure-free for 8 days. Praise God! May the medicine continue to work. I will continue to pray for your dear girl. I love the photo of the two of you. It looks like you are bathed in light from above.

    Debbie Z.

    "Peace I leave with you: my peace I give to you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid." John 14:27

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  11. Love you guys! Blessings on sweet Emma!!!!

    Di

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  12. Praying for you all! And sorry the doctor wouldn't answer your questions. :-( Eight days without a seizure is great! --Missy

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  13. Thank you, Donna,for giving us news from Emma. I keep thinking of her and all of your family. Truly and deeply.

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  14. I have been thinking of you and Emma and I'm so glad she is doing better. I love that quote you shared too. Will continue to pray. God is good!

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  15. I love that quote!! Thanks!
    Prayers and blessings on you & your lovely girl as you navigate this unexpected bend in the road. Sorry.

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  16. Anonymous10:02 PM

    First time commenting! My son was diagnosed with absence seizure epilepsy when he was 7 (he's 10 now). He was on 2 pills a day until this summer and it's been dropped down to 1 pill a day. It took a few medication trials initially to get the correct one and the correct dose. He was having up to 30 seizures a day, some as long as 45 seconds. If you add that up that takes a lot of "life" out of life! She will do good on the medication. Hugs to you all!

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  17. Anonymous11:11 PM

    My 6 year old daughter was diagnosed with childhood absence epilepsy last year. It was tough to figure out as the seizures were so hard to "see". She has been on meds for 1 year and has another year to go. Then another EEG and hopefully we will see that she is seizure free!

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  18. Anonymous8:01 AM

    So very glad the meds are working! Emma is already such a compassionate person, but going through this trial will probably make her even better at her future counseling career. Prayers for continued health, hope and healing.

    Mary Z

    P.S. I love that photo of the two of you!

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  19. Anonymous3:27 PM

    Thank God, My brother had similar situation and the meds worked beautifully, after a month he was driving and totally back to normal and no further problems <3
    sandyleeisme

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