Wednesday, August 28, 2024

"The things you think you can't survive you somehow divinely make it through."





Over the last year I have saved quotes that encouraged me while going thru treatment.


"I have found that it is the small everyday deed of ordinary folks that keep the darkness at bay.
Small acts of kindness and love."
Gandalf






My brother in law sent this to me.  We are not generally in touch.
But he thought of me one day and sent it.
I found comfort in this.


My other brother in law, whom I generally don't text...
texted Patrick almost daily asking about me.
Knowing someone cares and is checking in is a sweet comfort.







I had two pesky wounds that took from Nov. 15 until May 15ish to heal.
The healing was indeed miraculous. I was told over and over by the oncologist that
'these will not heal when you are on Chemo.'
After some dramatic wound events, Patrick learned how to take care of my wounds and packed and dressed them twice a day.
He prayed that they would heal. Diligently.
He was sure they would heal.
And they did.
Patrick and I have been married for 44 years.  I'm not aware of much praying going on in those first 40 years....

He has, however,  become the family prayer warrior in the last few years.
This is a miracle too.
He has been encouraged to have witnessed many answered prayers.
I couldn't really pray much for myself so I am thankful for a husband who lifts me and the children up in prayer with great faith in the outcome.







I'm sure you all have had some sort of trauma in your life.  A restful night's sleep is a challenge.  
It took great effort to stop the reel of traumatic events from playing over and over.
Seeing the events from start to finish.
Telling your story over and over in your head.
This is trauma. 
I learned to catch those thoughts. 
I had to recognize what I was doing.
"Okay, I'm spiraling again. Yes.  It was awful. It is over now.
You are safe.  Give it to God."

It was the unexpected things that got me.

This is the best way I can think of as to how I felt.
Not badass at all.






I surrender all




Cindy. Every morning.


Day after surgery.






crosses and hearts from the holy land.



Sisters always praying and loving.






and cleaning. haha





Children remembering to pray.


My constant.



Like the prayers being spoken for George Bailey at the beginning of "It's a Wonderful Life",
the prayers for me lifted and surrounded me as I slowly healed.



The good parts. 
The encouraging parts.

If I want to become a stand up comedian I have a few wild
stories that would, I promise, have you laughing so hard.

How can something so traumatic be so hilarious?

I do know a few things;

I'd rather make someone laugh than cry.

Positive statements are calming.
"It is going to heal." 
(my favorite)

No matter how this ends up,
I get to go be with Jesus.


And so it goes.

Next time.

What do I do with this life,
when I can't do much?


Love you. Mean it.
Encourage one another,
Donna Elsie



Tuesday, August 27, 2024

The Thunderbirds were loud and so was I.




As I mentioned in the last post, Patrick has retired.  His main focus has been taking care of me and the house and Ginny.  As soon as I was finished with treatments Patrick started his own summer of appointments and walking and PT.  So his retirement has been a dud.  He does, however, like not working.  He likes not doing anything. 

We finally were able to take a trip to visit the kids.
Matthew and I schemed to go to the Offut Air Force base Air Show.
Patrick Jr. of course would join us and when I mentioned to Emma that we were going to Omaha,
she really wanted to come and see everyone, too.  So a quick family gathering fell into messy place.
Katie stayed home and watched Ginny for us as she did not have time off on such short notice.  It's a shame she couldn't come, but the boys and Emma had all been here in the Spring and she saw everyone then.


Please enjoy these random pictures.  



We congregated at Matthew and Melinda's.
They handle the chaos well.



The big kids. 


We watched the air show at a near by lake. (I'm not quite strong enough to hike thru a big crowd at a airforce base yet, so Matthew found the perfect spot.)  We parked under big poplar trees and basically had a picnic with an airshow thrown in.  This suited us all better than sitting in the sun on the tarmac!  
(It was in the 90's)





We took a photo!  Yay. Patrick Jr. was not there yet. Boo.
He has a little guy and he works around naps and does a great job!





Fun photobomb. 
Malachi  (6th grade) and Asher (8th grade)




Emma and happy little Jordan.





Jordan dear




Dottie, Patrick's oldest gal.  He will be a first grader,
homeschooled by mom.  She is reading already and just loves books.





Silas is my buddy.  He planted his mini chair next to my big chair and we had a chat.  



Zeke made friends with a cicada.  
(He is my friend, too)










Emma has been my airshow buddy for years.
We saw so many shows in Chicago together!






Melinda looking beautiful as usual!
She is not really a fan...might have something to do with the sunburn she had while laboring with Asher after a hot sunny airshow back in 2010.




Oh, how everyone loves having their pictures taken! haha
I'm glad to have the memory.  Sunday morning at a park before we all head home.








Patrick snapped the best shot of the day!  The original photo is a 'live' version and you can see the jets flying and starting the smoke!  It's great!
Griffin was unimpressed!  

*********

Hair growth photos
Aug 22nd
five and 1/2 months post chemo











To see more of the hair story follow link below

 Quiet Life: The Aftermath



*******

So there you have my awkward return to family blogging.
I've got another post in the works so that should be up soon.
Thank you for the kind comments on the last blog.
They were as lovely as always.  I feel so fortunate to have you all in my life.

Encourage one another,
Donna







 







Wednesday, August 14, 2024

Encourage one another...the aftermath.

 Since 2004 this blogspace has been a place for encouragement.

A place for beauty. friends, faith and fun.

I was short on those things and felt too overwhelmed to share my illness with the world.  So I didn't.

As Nora Ephron says "Everything is copy."  ("meaning that anything and everything that happens to you is fair game to write about.")

Nora died of a blood disease.  And she did not write about it.  

I could not write about my cancer either.

I could not even communicate well about it to my family.  Patrick became a great liaison for me. He kept our families informed about each appointment, about the healing of wounds, ER visits and low days.  

As Ethyl says about Norman in On Golden Pond, "You are my knight in shining armour, don't you forget it." I now say this earnestly about my dear husband.

There is a reason, I'm sharing this now.  Because  I've needed encouragement ABOUT MY HAIR and have not found any on line.  I'm going to provide pictures to show the progression of how hideous it is to lose your hair (it was for me) and how long it takes to grow back.  

"This is what you want to share, Donna?"

Yes. This what I want to share.  

In a nutshell I will fill you in:

Sept 15, 2023 I was diagnosed with Triple Neg. Breast Cancer. .9

Nov 15, 2023 Surgery. Lumpectomy. Three lymph nodes removed to check for cancer.

Nov ?, 2023. Clear margins.  Lymph nodes clear.

Dec. 20, 2023 Chemo starts. four rounds. 

March 4, 2024 Final Chemo

May 5, 2024  Hospitalization for blood clots in leg and lungs

May 15, 2024 Radiation starts.  

June 5, 2024 Final Radiation. 


All done.  We've done what we can.  Just hope and pray this nasty form of cancer hasn't traveled.  And for that... I just wait.  

Wait and grow my hair!



See....the weird thing is as I was hiding away with my cancer so no one had to know, my hair is a blabber mouth after all the treatments are done.

Okay.  Here we go with the pictures.  Ready.

Should I  bury the lead and show you my hair now? nope. gotta wait.


I bought hats. I don't like hats. But I bought hats.


Got a trim just before chemo.


I tried a cold cap.  This is suppose to save your hair by making it so cold that the chemicals can't get to your hair roots. You wear it during chemo and it adds hours to your treatment.
 It is costly. 



Ice on my hair after wearing the cold cap.




Finished with first chemo and first cold cap.
Feeling just fine and ready to go home.  
Wondering how I will feel in the days to come...





Three weeks later.  My hair started falling out.
Jan 11th, 2024



I'd say over 70% of my hair fell out.



I started wearing hats.  I would not look at myself in the mirror.




You see, my hair was the last thing I had going for me.
Don't argue.  Everything else. Pretty much shot.



Now I looked like Ben Franklin on a good day and Gollum on a bad day.



And so I wore hats and was happy to have those long strands to create the illusion of still having nice hair. ha.  The second Chemo I was mad about the hair falling out and an ill timed comment by my doctor's assistant....and I could not deal with the cold cap so decided not to use it.
(Good news about that, I got a big refund)


And this was my winter.  Watching Kdramas.  Being lonely. 
One day at a time.




I washed and fluffed my hair.  
I know so many, maybe even most would shave it all off but not me.


 I liked my strands.  A lot.



And then this happened to my face!
I'm showing you this because it's just too hilarious.
I'm humbled enough already...
thank you very much.





Then I saw this picture of my hair in my memories.
Nice hair girl.



Last day of Chemo.
The strands of hair are almost gone.




Almost. Gone.



So I cut them. 



Now.  So we can see how fast/slow my hair grows. I will date them.
May 3, 2024
Two months post final chemo.




May 8th!  
OMG. 
My hair is growing.




Looking good in back. 







May 21. Feels so soft.
But terribly embarrassed to be in public without a hat.
But let me tell you a funny thing about hats on bald heads.  They slide up and off.
It's very annoying.




Janet sent me lip gloss to look more feminine.




Maybe a scarf will help.
May 31, 2024




June 5th 2024
Done with all treatments.



I am the bearer of cowlicks.  My widows peak is returning.
June 14, 2024



My hair color is exactly like my brother Jim's now.  
June 14, 2024




I found a headband with a bow.  This makes me happy and I can go out in public.
June 22, 2024



June 24th 2024



It feels really slow.  
Quite thick. But not as long as I would have expected
June 27th 2024







July 4th 2024.
four months post final chemo.









July 21st.



It doesn't feel like it is growing.
Only if I look back at the May pictures am I reminded of how it was.





Aug 6th.


Aug 11th 2024
A good week of hair growing


Today. 
August 14th
Washed and fluffed.




Aug 14th 2024


Aug 14th 2024
Five Months Post chemo.



I will continue to update you all on the state of my hair.

1. The cold cap did not work for me at all.

2. I have taken two vitamins and used one serum on my hair.
I do not know if they worked.
I used vitamins and serum from Champo.
And I used Mary Ruths Liquid Morning and Hair growth vitamins.





I'm not horrified to look at myself now. So that is really good.

And now I've outed myself about The cancer so I don't have to hide and you will know why my hair is so short when I post on FB or Insta or here.

Patrick is retired now.  He has been my helper as mentioned above.  That gives me a good topic for next time I think.

The helpers.

Please don't be mad at me because I couldn't share more publically.  I know you would all have been praying like crazy for me.  

Love you.  Missed you. Mean it.

Donna