Monday, October 20, 2014

And so it goes...

"I was run-nang" #forrest #feelsgood

Hi friends,

Emma said I could share a little more of what is going on.
In the last ten days Emma has had two seizures.  Both of them included
ambulance rides to Emergency Rooms.

The first seizure was a shock as we had absolutely NO IDEA why this was happening.
 She had it on the bus coming home and landed in Beloit Memorial Hospital for a few hours.
They did a cat scan and that looked clear.

The following day Emma had an EEG and it appears on first look that she has something called 
Juvenile Absence Epilepsy.

But she was put on medicine and we thought...well...that was just a one time thing...
her absence seizures were so mild we did not even know she was having a seizure.

So she went back to Chicago.
Getting in to a neurologist is pretty impossible and nobody seems as concerned about this as we do...so I came back to Wis.

Then exactly on week later she had another.  It was even more of a shock....and very hard on me as Emma was in Chicago.
Thankfully I had been in touch, just that day with my friend kathyb 'from the comments.'
Kathy lives close to the city and is a nurse.
She and her husband rushed to the hospital to be with Emma until I could get there.
What a comfort to know that Emma was not alone and with kind, loving friends.
I am thankful God gave us kathyb and her Fireman.

They released Emma that night saying she was good to go.
So I am sticking close to Em until she sees a neurologist tomorrow in Chicago.

She is taking off this week of work and classes and internship.

Yesterday she felt like running.
So I drove the car behind her.


We are hoping and praying she does well with the medicine and that her seizures can be controlled without much fuss.

We really don't know much and we are looking forward to meeting with a neruologist.

Please pray for Emma.

With love,
Donna








60 comments:

  1. Heather M in AL9:50 AM

    Praying in Alabama for Emma (and those who love her so)!

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  2. I'm sure this must have been very scary for all of you! Praying for Emma and your whole family! I've been repeating this verse over and over in the last couple weeks. It seems so many people are needing prayer lately...
    "This is my command -- be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go. Joshua 1:9 (NLT)
    God Bless!

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  3. Anonymous10:14 AM

    How scary for you all. I will pray for Emma and you all, dear Donna.
    Thanks for sharing with us.
    much love,
    Sarah P. from Iowa

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  4. Praying. Thanks for sharing with us. I am glad you can be there for her.

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  5. {{{Emma}}} {{{Donna}}} Thank you for sharing a bit more.....I will be praying!

    Blessings,
    Tammy ~@~

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  6. Anonymous10:41 AM

    Praying...

    So thankful that we make friends from so many places and that people are filled with goodness!

    Go, Emma!

    Love from Bridget in Minnesota

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  7. Anonymous11:05 AM

    Praying for dear Emma. ((Hugs)) to her and to you, too. And God bless Kathyb and her Fireman.

    Love you. Mean it.

    Mary Z

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  8. That is scary! Praying for Emma!

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  9. Praying for dear Emma and her family too. 1 Peter 5:7

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  10. Much love to Emma and to you. I am so glad you are sticking close. Praying for you to have the answers you need.

    I will be praying each and every day.

    Hugs,
    Di

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  11. The unknown is scary. But faith is being sure of what we hope for. (Hebrews 11) Prayers for Emma to be correctly diagnosed and treated, if called for. And for all of you to feel the comfort and peace only God can provide! I'm with Julie, Joshua 1:9!

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  12. Just stopped here at work and said a prayer for Emma, for you, and for your whole family as I'm sure you are all concerned. When I had a neuro situation about 10 years ago, my friend shared 1 Peter 5:7 with me, 'Cast all your anxiety on him because he cares for you'. Was, and still is, so reassuring...

    Will keep you close in prayer, Donna.

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  13. Prayers for Emma and for your and your family. Such a scary time but its so nice to have Jesus to give those worries to.

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  14. Prayers for Emma! I have a son (he's three) who was born with kidney disease and I know from experience that there is nothing harder in this world than feeling helpless where your child is concerned. Everything will be ok. Hugs to you all. :) -- Jamie

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  15. Anonymous12:17 PM

    Definitely in my prayers!
    Melanie M

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  16. My prayers are all yours and Emma's.

    I wish for you an abundance of strength when you need it most. xo

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  17. Anonymous12:38 PM

    I commented before on my Kindle, now sitting at my laptop and the verse popped into my head:

    "Perfect Love casts out fear."

    Now I have to look it up and see if I'm remembering it right ...

    I John 4:18 - "There is no fear in love, but perfect love drives out fear."

    I am praying that the Love of God will keep you all from fear and anxiety. That the Lord will encourage your hearts.

    ~ Susan (on her laptop, without her little photo)

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  18. Anonymous12:53 PM

    Praying: "Dear Almighty God, we entrust Emma to Thy never-failing care and love. Please guide and direct the doctor and nurses to help her to regain good health. And, give Emma and her family Your peace that passes all understanding. Amen"
    love and prayers, jep

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  19. Anonymous12:58 PM

    Sending prayers for Emma and your family: hope, healing, and health.

    hmbalison

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  20. Dawn K1:24 PM

    Oh my, this must have been quite a shock. I'm praying for Emma and for all of you! Thank you for sharing with us, and know that you are receiving many cyber hugs!

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  21. Oh, Donna, I had no idea! And me emailing you about piddly things while you were concerned about your Emma. I am praying for Emma, for you, for the doctors and tests. Praising the Lord that you are able to be with her until her neurologist appointment.

    I wanted to share this JJ Heller song with you:
    http://youtu.be/FlL8LayF0uw

    Hugs.

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  22. Praying for you, asking God to lead the way through this unexpected journey. Love and hugs, dear Donna, Carol

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  23. Oh, how frightening for both of you! Blessings for healing, strength, and grace as you move through this.

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  24. Praying this for you and Emma:
    "May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit." Romans 15:13

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    Replies
    1. Anonymous3:36 PM

      this is my very favorite verse :-)

      Amen!

      ~ S

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  25. Dear Donna & Emma: I will add you to my prayers.

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  26. Prayers for Emma and for you! How scary to be separated when it happened the second time. Getting in to see a neurologist is ridiculously, stupidly hard...prayers for that too.

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  27. Lots of love and prayers. xxoo

    I LOVE that you drove behind her while she jogged. <3 And who looks THAT beautiful in a beanie?? Jogging?? #emma

    You are an amazing, supportive and loving Mom, Donna.

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    Replies
    1. janice10:10 PM

      those were my 2 thoughts as well...naturally...sending lots of prayers to everyone

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  28. Donna...you are very blessed to have a friend like kathyb and a community that prays for you and your family, but I don't need to tell you that. While Im not in the Chicago area, I am able to join the circle of friends who will be faithfully praying...for healing, for the doctors to give the right diagnosis and treatment, for peace and comfort as you wait to see the neurologist and for you and your family to be lifted up each and every day. As a cancer fighter, I can tell you there has been nothing as powerful as the prayers that have been lifted up for me especially at those time when I can't find the strength to pray. I have literally felt them when I needed them most. God bless you! Debra

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  29. Anonymous4:04 PM

    Hugs to you and your family... epilepsy is very scary and also very common. I think around 10% of the population has it, but no one ever says "HI I'm Sally & I take meds to control my epilepsy". I think that is why doctors & nurses don't seem to be as freaked out as parents. =) Good to see the EEG led to a diagnosis, hopefully they can figure out meds to control the seizures. I'll be praying for all of you.
    Rachel in ND

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  30. Amy J in WI5:18 PM

    Donna, Thanks for sharing. Emma and your family are in my prayers. Perhaps you should take up jogging? I can picture you driving behind Emma and it makes me smile :).

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  31. praying for you and Emma, and for answers tomorrow. Thankful for your friends in Chicago -- I can't imagine what you were going through.

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  32. Praying for Emma and her family too.

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  33. So sorry to hear this. My sister-in-law has epilepsy that is controlled by medication. Hope they find out what is wrong quickly and can help her.

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  34. Anonymous10:02 PM

    Putting Emma on my prayer list and will pray daily.
    May the peace that passes all understanding be with Emma and family.
    In Christ,
    Deb in AZ

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  35. Praying for your Emma, who feels almost like "our" Emma as well. God's comfort for you all in this time of wait. xo melzie

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  36. We will certainly be praying for dear Emma!

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  37. I have an Emma in my life going through the same thing. She will be 4 in December and had a seizure on October 1 while riding in the car, strapped in her car seat. After numerous tests, including an MRI, it has been determined that she has epilepsy. All tests indicate that the seizure on the 1st was not her first. Fortunately a lot of children grow out of it. She has to be on anti-seizure medication for 2 years after her most recent seizure so the clock starts over if she has any more. I will pray for your Emma.

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    Replies
    1. Dear Tami,
      I will pray for your Emma too.
      God bless.

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    2. Adding my prayers for little Emma

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    3. Anonymous8:14 AM

      Praying for little Emma, too
      love and prayers, jep

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  38. Praying for all of you.

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  39. (((((Donna))))) (((((Emma))))) Prayers are going up for both of you. What a scary time. Prayers for comfort, calm and peace. May you feel the loving arms of Jesus wrapped around you. "For God hath not given us a spirit of fear, but of power, and of love, and of a sound mind.." 2 Tim. 1:7 Prayers for the doctors also, that they will find answers. Keep the faith!

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  40. Anonymous8:27 AM

    Praying for you!

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  41. Anonymous12:37 PM

    Praying for Emma and that her medicine will work and no more seizures! I will also be praying for her neurology appointment and that God will give the doctor she sees total wisdom concerning her and the very best plan of action. God bless kathyb and her husband for being with her at the hospital. It is so wonderful when the body Christ works together, encouraging and lifting up. Praying for you, too, Donna. So hard for a mom.

    Debbie Z.

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  42. valerie2:05 PM

    prayers for your girl and for you...hang in there, it's all in God's hand!

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  43. I am praying for Emma now, and those helping her and for her family too.

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  44. Axelle the french reader3:17 PM

    Oh, shit, Donna... I feel so so sorry. I promise, I'll think deeply to emma and all your family. I feel so concerned about what happens to yours. I sincerely cross fingers ans I' with you in thoughts. Very very friendly.

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  45. Anonymous5:56 PM

    Keeping all of you in my thoughts and prayers!
    Karen b

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  46. Anonymous7:38 PM

    Thinking of you, and praying for you and your family.
    I know how scary this can be!
    Mary Jo

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  47. Prayers for you all! SO scary, but so wonderful that you have help and can be near her during this time :)

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  48. Anonymous6:12 PM

    Prayer going out for you all.

    Just read online how diet soda is triggering seizures in those prone to them.

    So thankful we can pray for one another, across the miles and He hears our prayers.

    Kristi in LV

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  49. Just checking in to see how the appointment went, Donna.

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  50. Chrystal3:13 PM

    Sending prayers for Emma. That is SO scary!
    I wish you were here in Houston. I see a wonderful neurologist (for migraines) and I'm sure he could help. :(

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  51. Anonymous9:51 AM

    Sending you and your girl love and prayers! I'm glad she is home with you and you can love all over her.

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  52. Cyndi K G5:14 PM

    Praying for you and your family, Donna. Love, love, love!

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  53. I have a daughter who has epilepsy so i understand. I pray for healing

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